In the Samarkand region, home care has begun to be provided to children with severe illnesses
Since September 28, in Samarkand region, specialists have been visiting children with severe incurable illnesses at home. They help relieve pain and other symptoms, and train parents in child care. According to the National Social Protection Agency, more than 300 children in the region need such support. "We cannot change a child's diagnosis, but we can change every day of their life," [...]
In the Samarkand region, home-based care has been launched for children with severe illnesses
Since September 28, specialists in the Samarkand region have begun visiting the homes of children with severe, incurable illnesses. They help alleviate pain and other symptoms, as well as train parents in child care. According to the National Social Protection Agency, more than 300 children in the region require such support.
"We cannot change a child's diagnosis, but we can change every single day of their life," stated Shahnoza Mirziyoyeva, First Deputy Director of the agency.
The mobile team includes medical specialists, social workers, and psychologists. They assess the child's condition, develop an individualized care plan, and help manage pain and other symptoms. Parents are also taught child care skills.
The "Inson" Social Service Centers open a separate case file for each child and assist families in receiving the necessary support. In particular, children are provided with specialized wheelchairs, standers, functional beds, and anti-decubitus mattresses.
At the same time, the National Social Protection Agency is constructing a children's hospice. Along with mobile care, it will become part of a unified system of palliative care — assistance aimed at relieving pain and improving the quality of life during severe illnesses.
According to Shahnoza Mirziyoyeva, it is important to consider not only the child's diagnosis, but also their needs, desires, and right to participate in society. Assistance should be accessible to the family at home or in a hospice — depending on the child's condition and needs.